FORConn
Friends of Retarded Citizens
of Connecticut

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Mental Retardation

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What is Mental Retardation?
Connecticut General Statutes 1-1g define mental retardation as:

"Mental retardation means a significantly subaverage general intellectual functioning existing concurrently with deficits in adaptive behavior and manifested during the developmental period (between birth and the eighteenth birthday)."

What Causes Mental Retardation?
The Merck Manual of Medical Information--Home Edition Section 23. Children's Health Issues Chapter 255 states:

"Mental Retardation is subaverage intellectual ability present from birth or early infancy. People who are mentally retarded have a lower intellectual development than normal and difficulties in learning and social adaptation. About 3 percent of the total population are mentally retarded. Causes Intelligence is determined by both heredity and environment. In most cases of mental retardation, the cause is unknown. But several conditions during a woman's pregnancy can cause or contribute to mental retardation in her child. Common ones include the use of certain drugs, excessive consumption of alcohol, radiation therapy, poor nutrition, and certain viral infections, such as German measles (rubella). Chromosomal abnormalities, such as Down syndrome, are a common cause of mental retardation. A number of hereditary disorders also can cause mental retardation. Some, such as phenylketonuria and cretinism can be corrected before mental retardation occurs. Difficulties associated with premature birth, head injury during birth, or very low oxygen levels during birth also may cause mental retardation. "

Is Mental Retardation Treatable?
Interventions may help stop or slow down the disease or condition that is causing the mental retardation. Therapy, educational supports, medical intervention and family support may help improve the quality of life and condition for the person with mental retardation.

Is Mental Retardation Preventable?
Some forms of mental retardation are preventable, including but not limited to the following:

  • The rubella vaccine has dramatically decreased German measles (rubella) as a cause of mental retardation.
  • Gestational causes of mental retardation that are preventable if treated prior to fetal damage including but not limited to Fetal Alcohol Syndrome, complications from drug use and improper nutrition.
  • Diseases such as phenylketonuria and cretinism can be corrected before mental retardation occurs.

Changing the Name of Mental Retardation

The White House, President George W. Bush                           

 Executive Order 12994

By the authority vested in me as President by the Constitution and the laws of the United States of America, and in order to change the name of the "Presidents Committee on Mental Retardation" to the "Presidents Committee for People with Intellectual Disabilities" (the "Committee") and expand the membership of the Committee, it is hereby ordered as follows:

Section 1.  The Presidents Committee on Mental Retardation is hereby renamed the Presidents Committee for People with Intellectual Disabilities.

Section 2.  Executive Order 12994 of March 21, 1996, is hereby amended by deleting the words "mental retardation" and inserting the words "intellectual disabilities" in lieu thereof throughout the text of that order, except in the title, and first line of the preamble, and section 1 of that order.

Section 3.  Section 1 of Executive Order 12994 is amended by deleting the words "(the "Committee") and adding after "responsibilities," the words renamed the Presidents Committee for People with Intellectual Disabilities (the "Committee")."

Section 4.  Section 2 of Executive Order 12994 is amended by inserting after "(5)  The Secretary of Housing and Urban Development," the following: "(6)  The Secretary of Homeland Security," and renumbering former subsections (6) through (9) as subsections (10) through (13).

Section 5.  The Committee is continued until September30, 2005.

GEORGE W. BUSH

THE WHITE HOUSE

July 25, 2003

The On Going Debate About the Name Change

I was asked by the Health Educator for the Mohegan Tribal Health Department if I would be interested in attending one of their Health Awareness Days Events and set up a table with information about mental retardation.  Once a month they have this event and it is held in their employees cafeteria for their employees only.

On July 3, 2003 I attended their event and set up a table with brochures and information on mental retardation.  The sign placed on my table read Developmental Disabilities.

During the day several employees looked at all the different displays from all the different organizations that were there.  I didn't have too many people during the day who were interested in what I had displayed but the most important thing I learned that day was not surprising to be but certainly reinforced by believes.

One employee while looking at the material I had displayed on the table and after reading the sign on the table which said Developmental Disabilities   asked me what did those words mean.  I said in this case they mean Mental Retardation after which he replied oh, OK I know what that is.

The point being, what Developmental Disabilities means and what Mental Retardation means is all together different and can be very confusing and in some cases as this one points out meaningless.

Robert Wood
Past President
FORConn
July 10, 2003

 

  • Public Act 06-92 (HB 5478) was passed in 2006 by the Legislature and requires DMR to solicit input regarding a name change for the Department from clients and families receiving services provided by the Department, advocates of persons with mental retardation and other interested parties.  DMR is required to submit a report of the findings and recommendations, including the cost of any recommended name change, to the Governor, the Office of Policy and Management and the Public Health Committee not later than January 1, 2007.

There will be a statewide public forum at 9:30 AM on Thursday, September 7, 2006 in Room 1D at the Legislative Office Building in Hartford.  Additional details are available on DMR's website: http://www.dmr.state.ct.us/NameChange.htm.

 

Additional Links

  • Should Specialized Health Services Exist for People with Medically/Dentally-complex Mental Retardation/Developmental Disabilities?
    Summary: Philip May, M.D. explores the history of services for people with mental retardation. He notes that while service trends have moved away from a "one-size fits all" approach to a more individualized approach which takes into account individual needs, health care services have not followed suit. Using the evolution of the hospital as an analogy, Dr. May suggests the need for "medical specialization" in the fields of developmental medicine and dentistry. Dr. May is a Clinical Associate Professor of Medicine at Robert Woods Johnson School of Medicine, a physician at Hunterdon Developmental Center, and a Voice of the Retarded (VOR) Board Member.
    Written by Philip May, M.D., October 22, 2001
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